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If there wasn’t enough confusion and frustration over the mysterious illness in LeRoy, add dueling doctors to the mix.

Dr. Rosario Trifiletti, a New Jersey physician who examined eight of the girls exhibited Tourette’s like symptoms, has concluded they are suffering from an infection associated with a PANDAS like illness. 
Dr. Laszlo Mechtler of Buffalo’s Dent Institute, who is treating most of the LeRoy students, maintains a diagnosis of conversion disorder. 
Trifiletti revealed his diagnosis on the Dr. Drew TV show last night.
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Comments

# dc
Tuesday, February 07, 2012 8:45 AM
I don't know what the confusion is here. You have one doctor that has actual lab results which points to a cause (strep antibodies) that is well known to effect certain body tissue (not unlike rheumatic fever affects heart tissue) and that is treated by relatively inexpensive (generic) antibiotics. Then you have another doctor that can't accept the idea that there might be a physical cause and can only come up with a diagnosis of exclusion that is treated with weekly office visits and the latest brand name psychiatric medication of choice.
# Krys Lewis
Tuesday, February 07, 2012 8:47 AM
Strangely similar to the girls in 1692 Salem, MA!!!!!?????
# Heather
Tuesday, February 07, 2012 8:49 AM
So has Dr. Mechtler ever personally examined these girls?, Are you aware of how many children are not diagnosed and not treated that do have PANDAS because of the non believers like Dr. Mechtler? These beautiful young girls are getting help and that is what they deserve !
# Emily
Tuesday, February 07, 2012 11:17 AM
This might help clear up confusion for people not aware of neurological autoimmune illnesses. It's a very good interview in Scientific American with OCD expert Michael Jenike, a professor of psychiatry at Harvard Medical School, who explains what PANDAS-like autoimmune illnesses are all about and why they might account for some of the mysterious illness in Le Roy:

http://www.scientificamerican.com/article.cfm?id=could-infection-cause-tourettes-like-symptoms-teenage-girls
# Lesleyloo
Tuesday, February 07, 2012 3:25 PM
How many others have suffered because of reluctance and the fact that PANDAS diagnosis is relatively new? Hopefully the neuro's and psychiatrists will get up to speed on this.
# Lesleyloo
Tuesday, February 07, 2012 5:19 PM
How many others have suffered because of reluctance and the fact that PANDAS diagnosis is relatively new? Hopefully the neuro's and psychiatrists will get up to speed on this.
# Pat G
Wednesday, February 08, 2012 12:31 PM
Given the severity of the tics, what is the harm in treating the condition as both PANDAS AND conversion disorder? Antibiotics and cognitive behavioral therapy would certainly be warranted to treat both potential conditions together.

I'm honestly wary of the conversion disorder diagnosis. My son was diagnosed with this at age 13 after a hard fall to the ground in a roller skating accident. He lost all feeling in his hands and forearms. Xrays and tests were normal, but yet we could prick him with a pin and draw blood and he couldn't feel it. I was told he had conversion disorder because the fall was traumatic for him. A few days later he was worse, and I took him to a chiropracter. After five adjustments, his sensation came back and he made a full recovery.

I'm glad these parents are going with their gut instincts and demanding further review. Kudos to the PANDAS neurologist who is willing to put his good name on the line to try to help these kids. Seems like a lot of people are afraid to step in and try to assist for fear that they might be wrong.
# Lesleyloo
Thursday, February 09, 2012 12:22 PM
That's so true Pat G, some people really have put themselves on the line for these kids- Howard from the Batavian, people here at WBTA, Dr. Drew, Bowcock, and last but not least, Dr. Trifiletti. I know there are also people behind the scenes supporting and reporting and a big THANK YOU to them!
# Natural_girl99
Friday, February 10, 2012 12:33 AM
The doctors should be checking their hearts and thyroids. And they need a detailed thyroid test...not the typical done in hospitals. Dr. Brownstien has a great video on overcoming thyroid/heart disease. I never knew the two were so closely related. My mother had severe neurological issues, and private autopsy revealed it was her heart. None of the hospitals suspected.
# Beth
Monday, February 13, 2012 10:44 AM
If Trifilleti is treating 8, how can Dent be treating "most" of the girls. There are 12 girls, I think u are leading your audience by saying Dent treats most of the girls. This is not correct. Clearly the parents feel their children are not getting proper care at Dent. Are you representing the facts here or are you trying to position the facts to suit your own personal opinion. The press clearly is not investigating enough and is not protecting the public, but protecting our government. Of course we do not want the press to insight fear, but to settle for the diagnosis of conversion disorder without challenging Dent on this diagnosis, strongly challenging, is bad journalism and bad reporting.

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