Smoke Free Now
News Tips
  
08

It's a concerning medical case from LeRoy High School: officials say several students have begun displaying symptoms consistent with Tourette's syndrome – and apparently, they don't know why.

LeRoy Superintendent Kimberly Cox first reported the incident to parents last week, in a letter sent home with students. The letter did not identify students involved in any way, and Cox assured parents that the school was consulting medical personnel and investigating the matter.

In speaking with WBTA News, Cox said she had no further comment than what was contained in the letter.

We spoke with UMMC neurologist Andwer Hilburger, who specializes in mental functions such as Tourette's syndrome. He explained that Tourette's syndrome is a genetic mental disorder characterized by motor and vocal "tics": twitches, blinks or vocal exclamations that the sufferer cannot control. Tourette's is also characterized by behavioral symptoms like excessive-complusive disorder and attention-deficit disorder. Tourette's sufferers may also be overly aggressive towards others.

Because it's genetic, Hilberger said odds are nearly impossible that the high-schoolers at LeRoy have all suddenly developed Tourette's.

But, Hilburger says the characteristic "tics" may be caused by other things.

"Sometimes they can be related to stress," he said. "A lot of the prescription medications for attention-deficit disorder will cause it, some anti-depressants will...there's also some illegal drugs than can cause it."

Hilburger also said a brain infection such as encephalitis could cause the "tics" to occur. Encephalitis is caused by viruses or bacteria, both of which can be contagious in humans.

Superintendent Kimberly Cox said she had no comment on the possibility of the current case at LeRoy being contagious. When pressed further, Cox replied that she had "no further information on that," and "no information on any other students who have displayed symptoms.”

Cox could not immediately confirm whether more information would be available in the future.

 

Actions: E-mail | Comments (39) RSS comment feed | Bookmark and Share

Comments

# Patrick Scanlon
Wednesday, November 09, 2011 9:06 AM
Tourette Syndrome (TS) is not typically characterized as a "mental disorder." Rather, it is an inherited (that is, genetic) neurobiological disorder. It is not communicable--you can no more catch TS than color-blindness.

More importantly, I'm aware of no evidence that people with TS are aggressive. People with this disorder, which often is quite subtle in its symptoms, are otherwise perfectly normal.

Those interested in learning the facts about TS should visit the website of the Tourette Syndrome Association of Greater Rochester and the Finger Lakes: http://rochestertourette.org/
# kimberly ballot
Wednesday, November 09, 2011 4:48 PM
Children with sudden-onset tics may have PANDAS (pediatric autoimmune neuropsychiatric disorder associated with strep) or a similar condition. The parents should check PANDAS websites. www.pandansresourcenetowrk.org ; www.pandasnetwork.org ; www.pandasfoundation.org ; www.latitudes.org - PANDAS forum
# Mike Campbell
Tuesday, November 15, 2011 5:11 PM
Check to see if the girls have had HPV vaccine. There are a lot of side effects with that vaccine
# candace
Tuesday, November 15, 2011 10:23 PM
you will find that these kids probably have lyme disease with will cause infections of various types ...these kids all should be tested correctly for lyme disease ..they didnn't just suddenly get torrret syndrome...which is just a name for infection that doctors don't test correctly for.
# dan
Friday, November 18, 2011 10:02 AM
hpv vaccine side effects are (neuralogical issues) coincadence ? maybe but i havent heard any updates on these girls , i think for the people if this community this should be the headline story! not more garbage about the latest phone for sale or sports team. I pray for these girls and this country with tears.
# Kelli
Tuesday, November 22, 2011 4:48 PM
I agree 100% with Patrick's post. Where do they find these "neurologists" that quote things about tics & TS like they just stepped out of a 1950's text book.

No wonder it is so hard for people to overcome the stigma associated with this disorder.
# Jaycee
Tuesday, November 29, 2011 12:37 PM
Interesting how reliably the PANDAS, Lyme and HPV folk show up to comment on these stories. Where are the advocates for people with conversion disorders? They're a far more common cause for new-onset tics than any of the above (some of which have never been proven as a cause) and generally not treated well due to under-recognition.
# Johnny Transport
Wednesday, December 07, 2011 10:37 AM
Hey Jaycee------Much of what Pandas and Lyme and HPV are possibly not looked at for issues. How many kids have "transient tics" Tourettes, adhd, or other neuro issues that go unexplained???? It can be easy to treat the symptoms but no so to try to figure the root cause and eliminate that. I think there is mounting evidence of vaccinations, immune responses in some persons, infectious agents etc that are causing many of the issues. We are just not being told. Why the silence from the school and medical community??????
# Jaycee
Thursday, December 08, 2011 12:37 AM
Johnny,

In the medical literature, there is a single case report of Tourette syndrome attributed to Lyme borreliosis (dubious, and without evidence of acute infection) from 13 years ago that has never been supported by subsequent reports. There are no (zero) proven published cases of vaccine-related Tourette's (including HPV). The jury is out and a clinical trial ongoing regarding PANDAS. Hardly "mounting evidence." You may think this is a conspiracy of silence, but what would possibly be the motive for this among thousands and thousands of clinicians?
# debbie
Saturday, December 17, 2011 11:44 PM
I suspect HPV also. It's the very first thing I thought of. Hmmm what are high school girls exposed to? I would be very interested to hear if they all had the HPV vaccine, a possible explanation for the cluster may be found in the vaccine lot number. I heard about this on Brother Weeze. I hadn't heard about it elsewhere. As far as motive to be quite about it? Always follow the $$$.
# Johnny Transport
Tuesday, December 20, 2011 2:33 PM
Jaycee, what do we know----More vaccinations before 5yrs old than 30-40 yrs ago, more autism than 30-40 yrs ago. The fact is our immune response is a part of the picture. What do immunizations do??? Boost the immune response. My question is again---why the silence???? What about the truth??? Truth has no agenda. There are an increasing amount of integrative docs/peds and homeopaths that are actually addressing these issues. If the AA of Pediatrics wants to start testing as low as 4-5 yrs old for ADHD, there is a problem. Again, why the silence about what has been found??????
# Jaycee
Tuesday, December 27, 2011 12:37 AM
Why the silence? Probably the same reason for silence that attends any other empty equation of correlation with causation: lack of proof. Why the silence about cell phone use, or Hollister fabrics, or mochacinos, all of which these kids were exposed to moreso than those a generation agot? Because these have as much scientific validity as explanations as the HPV immunization.
# Johnny Transport
Tuesday, December 27, 2011 4:22 PM
Jaycee, maybe I am missing something but your statement(s) are just silly and don't follow logic. First you say that we must consider "conversion disorder" as a primary possibility,but there is NO known root cause for this conversion disorder diagnosis. It is a clinical diagnosis.THEN you say Pandas,Lyme HPV are not valid things to look at as a root cause to neuro/psych issues. And then go on to say there is, let me quote "empty equation of correlation with causation: lack of proof." That is whole point, using data---Blood tests for a whole host of different stuff, to determining what is wrong instead of all these BS clinical diagnosis for Tourettes, ADHD, Transient Tic Disorder, seasonal depression....... Here are the symptoms, so therefore it must be..........you name it. The medical community does not engage their brains, it seems, to try and find the root cause and eliminate/treat the root cause.

I can tell you that whether it is strep or the immune response to strep, tics are caused by strep and are probably caused by other stuff too---other infections, environment---I do not know. I have seen it first hand. I can tell you for sure that anxiety is caused by the EBV virus---again seen it first hand. All we are saying is look at the relationship to vaccinations which are supposed to boost the immune system, the immune response(antibodies) to all environmental factors, and the human bodies chemistry as in vitamins and minerals.

But, back to the silence thing----our educators, medical community, politicians and the media have an obligation to tell the truth. Therein lies the whole problem today. They don't. Yeah, just sit down and shut up!!!! But how many diseases have been beat due to early pioneers.
# Mindanoiha
Thursday, December 29, 2011 10:22 AM
Tics may be caused by aluminium poisoning.
http://home.earthlink.net/~joannefstruve/_wsn/page3.html

One possible explanation of a link between tics and Gardasil is that the vaccine contains neurotoxic aluminium.

The vaccine also contains an emulgent, polysorbate 80/Tween 80 which lowers surface tension and increases permeability of the blood-brain barrier.

(This property of emulgents is used in brain targeting. In special injections emulgents are present to facilitate for example passage of psychiatric or chemo drugs through the barrier in order to enhance contact with brain tissue).

The presence of polysorbate in Gardasil is to increase miscibility of the fluid. Unfortunately however its presence may facilitate the passage of substances including aluminium through the barrier into the brain. Aluminium accumulates in brain tissue.

Many girls who suffer from injuries after Gardasil show symptoms of brain damage.
# Jaycee
Sunday, January 01, 2012 8:05 PM
dear Johnny,

The psychological dynamics of conversion disorders and a number of effective treatments are well-established in the medical literature. I reviewed the evidence for the hypotheses you propose above. When you have evidence to add beyond unsupported anecdote, I'd be glad to hear it. As mentioned, there is a current NIH investigation of PANDAS underway; the results are pending.

Until then,

JC
# Johnny Transport
Tuesday, January 03, 2012 4:51 PM
JC---You still do not address what causes conversion disorder. And actually PANS is what the name may be changed to, just so you know. And just so you know, I already know what the results will be. As for everything else----thank God you are not working for me. It is this thinking of "if it is not in the medical literature, it must not be so or Uh um well, I did not learn it in med school, so uh,um I just don't know". Same stupid answer we get from the docs, educators, media, govt.......Truth has no agenda!!!!!!
# Jaycee
Wednesday, January 04, 2012 9:16 AM
Slogans aren't much of a substitute for data. But they probably feel good for lack of the latter.

Take (more) care,

JC
# Really?
Thursday, January 12, 2012 6:38 PM
To be honest, as I read through all of these comments I couldn't help but think about how immature and inconsiderate it is to sit here and argue about what could have caused these symptoms in these girls. No matter what the cause, the important thing is that it is discovered before anyone else is affected. Please people, set your egos aside and look at the bigger picture. We can all sit here and argue about how smart we are or how wrong everyone else is, but how does that help the situation?

Everyone has their own opinions about what they believe may be causing the symptoms. Why argue about who is right and who is wrong? Let's leave that to the professionals.
# derik
Friday, January 13, 2012 6:32 PM
Thanks to a fellow forum member (twcenter.net) this story has come to llight.
Amazing how it can be kept secret, even though I admit, I live in Florida.
This is very disturbing, I pray for all affected. I wonder if they have any commonalities, as mentioned, HPV, or a type of minstrual cycle pad / tampon.
I remember when I was a much younger man of some women, young girls becoming extremely ill from using the same brand of tampon. Some were fatal.

Has anyone taken any of the children to be tested in another state, away from the media, and get different opinions from physicians that are unaware of the local illness?

I have marked this to keep an eye on it, and am so hopeful these children are looked after with utmost haste.
At this point the gov't. should send the very best in to see what is going on.
I know Im rambling so I will stop. God bless the children and families, our prayers are with you.
# Johnny Transport
Monday, January 16, 2012 9:45 AM
Hey Jaycee------You mean data similar to the data that came out of the University of East Anglia???? Yes your right----data is the only thing that matters!!!!! True data that is!!! Not changed to fit an agenda or kept secret.

Really Really????? To sit there and say debate is immature and inconsiderate is just stupid. How is anyone else not going to get affected or get treatment since the truth is not coming out. We are discussing issues that effect the lives of thousands if not hundreds of thousands of kids----including my own. I frankly don't care about what anyone thinks or feels or believes what the cause is or what their opinion is. What is the truth??? Why won't they tell the common link?? Your post proves my point, we are all just speculating. I know for a fact my kids developed sudden onset tics, ocd and severe anxiety post strep infections----post antibiotics. I want to know why??? It is incumbent on our media and medical community to tell the truth. Is that really too much to ask. In fact, I think we should demand the truth. This whole PANDAS theory is and has been being proved and many of the naysayers are backtracking. I like many other parents who's children are affected by this and other neuro-psych disorders post strep infections are very frustrated at the lack of help or belief that this is real. We are living it. Leaving it to the professionals up to recently has been pointless. I can tell you there are thousands of parents who have given up on the "pros" and gone homeopathic,DAN docs, integrative Peds or other avenues since the "pros" have been slow to get on board. If you are a parent or know of someone dealing with these similar issues and need help, please go to ACN forums for help with Autism, ADHD, Tourettes, Tics, Lyme disease, Chronic infections, Mycoplasma infections, strep infections etc .......that you think have caused Neuro-psych issues. You are your child's best advocate!!!!!
# Garbosmed
Tuesday, January 17, 2012 2:09 PM
Well, there's apparently another batch of this at a different school down in Virginia. So whatever the underlying cause, it isn't strictly local. Given the push this year for Tdap boosters as well as HPV and flu shots, it makes sense to cross reference these cases and look to see whether they have received vaccines with the same lot numbers. The affected kids should all be tested for viral/bacterial infections as well as autoimmune markers and heavy metal toxicity from aluminum (Tdap and HPV) and mercury (Flu shot). It's important for them to get the help they need and to ensure that whatever the cause, it doesn't affect more children.
# Jean
Tuesday, January 17, 2012 11:21 PM
Please please get them tested for lyme and coinfections. There is not much known about these infections. Testing is unreliable and must be done through a specialty lab. For years they told my husband and I we were crazy, suffering from anxiety, etc. It is common for a group within the same environment to come down with lyme. NY is within the highest rate of lyme in the world.
# Shari
Wednesday, January 18, 2012 8:59 PM
Is this possibly PANDAS?
General Information
PANDAS, is an abbreviation for Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections. The term is used to describe a subset of children who have Obsessive Compulsive Disorder (OCD) and/or tic disorders such as Tourette's Syndrome, and in whom symptoms worsen following strep. infections such as "Strep throat" and Scarlet Fever.

The children usually have dramatic, "overnight" onset of symptoms, including motor or vocal tics, obsessions, and/or compulsions. In addition to these symptoms, children may also become moody, irritable or show concerns about separating from parents or loved ones. This abrupt onset is generally preceeded by a Strep. throat infection.

What is the mechanism behind this phenomenon? At present, it is unknown but researchers at the NIMH are pursuing a theory that the mechanism is similar to that of Rheumatic Fever, an autoimmune disorder triggered by strep. throat infections. In every bacterial infection, the body produces antibodies against the invading bacteria, and the antibodies help eliminate the bacteria from the body. However in Rheumatic Fever, the antibodies mistakenly recognize and "attack" the heart valves, joints, and/or certain parts of the brain. This phenomenon is called "molecular mimicry", which means that proteins on the cell wall of the strep. bacteria are similar in some way to the proteins of the heart valve, joints, or brain. Because the antibodies set off an immune reaction which damages those tissues, the child with Rheumatic Fever can get heart disease (especially mitral valve regurgitation), arthritis, and/or abnormal movements known as Sydenham’s Chorea or St. Vitus Dance.

In PANDAS, it is believed that something very similar to Sydenham’s Chorea occurs. One part of the brain that is affected in PANDAS is the Basal Ganglia, which is believed to be responsible for movement and behavior. Thus, the antibodies interact with the brain to cause tics and/or OCD, instead of Sydenham Chorea.


# JayCee
Thursday, January 19, 2012 11:23 PM
And 12 kids developed PANDAS in one place at one time? Simultaneously? All young women? And not one claiming (at least in the public record) to have had a strep infection treated or untreated? That would be an astronomic stretch, especially for a 'disease' that has yet to be proven in any scientifically reliable way.

By contrast, there are many documented cases of mass hysteria/psychogenic illness in the medical literature. Interestingly, a majority of these occur in schools in relatively insular communities, in folks <20 years old, with a >4:1 ratio of females:males, and historically with abnormal movements and convulsive- fainting-like spells being the most common symptoms. Many of these 'outbreaks' preceded the advent of Gardasil and occurred in communities without access to common vaccinations. The biggest difference now is that we have pseudoscientific conspiracy theorists with internet access.

So I'll repeat one of my original questions: What possible motive or agenda would multiple clinicians, working independently of one another, have for "covering up the truth about what's really going on" with these kids? They have nothing to lose and great to gain by being the one(s) to make the breakthrough diagnosis. What people seem to forget is that in general, folks in the medical community LOVE to be iconoclasts, to find the connection no-one else made (think of the guy who discovered the link between bacterial infection and stomach ulcers).

Take (more) care.

JC
# JayCee
Thursday, January 19, 2012 11:32 PM
And 12 kids developed PANDAS in one place at one time? Simultaneously? All young women? And not one claiming (at least in the public record) to have had a strep infection treated or untreated? That would be an astronomic stretch, especially for a 'disease' that has yet to be proven in any scientifically reliable way.

By contrast, there are many documented cases of mass hysteria/psychogenic illness in the medical literature. Interestingly, a majority of these occur in schools in relatively insular communities, in folks <20 years old, with a >4:1 ratio of females:males, and historically with abnormal movements and convulsive- fainting-like spells being the most common symptoms. Many of these 'outbreaks' preceded the advent of Gardasil and occurred in communities without access to common vaccinations. The biggest difference now is that we have pseudoscientific conspiracy theorists with internet access.

So I'll repeat one of my original questions: What possible motive or agenda would multiple clinicians, working independently of one another, have for "covering up the truth about what's really going on" with these kids? They have nothing to lose and great to gain by being the one(s) to make the breakthrough diagnosis. What people seem to forget is that in general, folks in the medical community LOVE to be iconoclasts, to find the connection no-one else made (think of the guy who discovered the link between bacterial infection and stomach ulcers).

Take (more) care.

JC
# PJ
Friday, January 20, 2012 2:56 PM
my child has been recovering from Sydenham's Chorea

Motor tics are one of the many symptoms of Sydenham's Chorea. Sydenham's Chorea I think has less of the psychiatric symptoms that occur with PANDAS and more of the motor tics.
# Laura
Thursday, January 26, 2012 8:54 PM
Definitely need to look at the overlap of these cases...

It is very likely that HPV is common among them, perhaps from the same batch ID, perhaps also had the flu vaccine this year, or perhaps also had a virus this fall.

The immune systems of most children are depressed. Giving vaccines on top of these weak immune systems is an easy recipe for something like these tics to occur.

Parents in LeRoy - speak out, share if your daughters had the HPV vaccine. There are so many more innocent young woman out there that face the same potential injury. Please speak out. Help others learn the potential risks of this vaccine.

Please also seek help to detox your daughters. You can help them recover if you work with a great nutritionist or naturopathic physician. Dr. Sherry Tenpenny is someone who helps vaccine injured folks recover. Also share your vaccine injury story at the VAERS website.

You are in my prayers.
# TJ
Friday, January 27, 2012 9:40 AM
Everybody is trying to place the blame on hpv vacs and other illneses as a root cause, but did anyone hear that two girls from a completly different state, stopped in LeRoy IL to eat on their way to a high school sports tournament. They too have come down with the same symptoms. My guess would be this is more of an inviromental issue if two non local girls contracted the same symptoms just from eating at a resturant there........open your eyes people if it were from vaccanations there would be more clusters than just illinois
# TJ
Friday, January 27, 2012 9:46 AM
In New York i mean not illinois
# Nicole
Saturday, January 28, 2012 1:27 PM
TJ, can you cite a reference for this connected out-of-state case? This is very interesting.
# PJ
Tuesday, January 31, 2012 10:46 AM

Like many illnesses caused by infections they can occur in clusters. Here is a map from PANDAS parents about reported cases of PANDAS that occured in clusters. PANDAS could be from pneumonia or strep. If strep there probably were also cases of Rheumatic Fever in joints, hearts and Sydenham's Chorea.

http://pandasnetwork.org/who-we-are/map-of-pandas-cases-300-families/

The most important thing is that the girls get the right help. Every child deserves a proper diagnosis and proper treatment. I think it is good that so many want to help.

I wish the young people who have been suffering in Leroy the best care. It is so exhausting what they are going through and so hard on them.

I thank God for Beth Maloney who wrote the book Saving Sammy. It helped me to know that strep should be on my daughter's diagnosis checklist.

From:
A mom of a child who has been recovering from Sydenham's Chorea and doing well.

# connie lawrence
Wednesday, February 01, 2012 9:44 AM
This is 2012, for years I suffered with Lyme disease following trip to Marthas Vinyard. From what all I read, the medical community is still living in the50's. Denial just blows my mind that for this many years this disease is pushed under the rug. Is it because we are a little nutty and become uncontrollable neurologically, consequently this gives the medical techs permission to say we are all nuts. Its a cop out. The CDC requires notification of Lyme, most dont report because it is too expensive and time consuming. Thank God I had a doc in the 80s that knew me inside and out, finally did spinal tap duhhhh there it was Borrelia I was treated for one year, have been well since. The complaint of long term treatment has come under scrunity with antibiotics, numerous disorders are treated for life with the antibiotics, why so much bah ha about Lyme? Treat it and get on, quit listening to what your peers say and stand up for yourself instead of listening to those that say "no Lyme" Hogwash. These girls need to be checked for something dealing with females, fake nails, menstral problems, tampons piercings.
# Johnny Transport
Wednesday, February 01, 2012 2:57 PM
PJ and Connie----I concur. As a crazy parent for saying my daughter is having low grade fevers and malaise every few days. I can tell you our same ped treated my daughter for tics after asymptomatic strep back in Dec 2010. I find out Sept 2011 that another girl in her class has had same reaction to strep and was treated by same ped. Oct of 2011 find out a family in the school is fighting Scarlet Fever. With the way our ped handled this, my gut tells me that these tic disorders and chorea like movements are much more prevalent than we really know and that if the cat gets out of the bag about just how dangerous strep can be along with Mycoplasma infections, and Lyme or other infections that can become chronic and that long term abx is a cure, it most certainly turn the medical community on its head.

PJ what was your daughters treatment?????
# PJ
Wednesday, February 01, 2012 4:22 PM
My child got a cough Jan. 2011 and no sore throat. The doctor thought it was a viurs. The cough went away like he said it would. March 2011 her arms were moving involuntarily- over and over. She had every Sydenham's Chorea and we really lost our girl for a while. It was like someone else was living with us. Once in a while her personality would peak through the illness to remind us that she was still there. She is usually a very brave child and she became fearful She is a very smart and lucky girl but with this she couldn't read or write. Her drawings of submarines and undergraound worm farms were replaced with simple stick drawings. She got over the illness in waves. Today, our girl is back!!!! She has been on Cephalexin bid for the most part since March 2011. This last summer she was on Penicillin but it didn't work. Her rash came back so fast- within 24 hours. I guess about 10 to 20% of kids with SC get a rash. It was like Scarlet Fever, eczema, and impetigo all over her body. She suffered greatly with the skin problems. After tyring bleach baths, seeing a dermatologist, autoimmune and allergy specialist....the pediatrician finally gave us Bactroban ointment. Today she is taking Cephalexin bid and has Bactroban ointment treaments daily until all of her skin clears. We are almost there. The skin infection also gave her Sydenham's Chroea symtpoms and as her skin clears....her memories are coming back and her abilities improving. She started going back to school in January 2012 1/2 days. February 2011 full days but no gym. Gym was too much for her and fatigued her too much....I think it is having to do directed gross motor movements without breaks....her stamina and ability isn't there yet. The girls and one guy that are sick in Leroy may not have Sydenham's or PANDAS but I am grateful it seems to be on the parents' checklist. I hope that my notes here may help another parent or child. I am from Illinois. I know that some kids get antibiotic injections if they have SC but they have to make sure they aren't allergic.

I have heard of different antibiotics working for kids with PANDAS.... sometimes Augmentin works, sometimes Zpack.....the doctors who specialize know how to figure it out. The pandasnetwork really helped me with my daughter. I am forever grateful to Beth Maloney who wrote Saving Sammy. We knew to ask for a step test last March beause Beth wrote the book and Sam was willing to help other kids.

I believe that infections will be found to be a major cause of many illnesses.

PJ
# PJ
Wednesday, February 01, 2012 9:55 PM
My post didn't go through yet....it's longer than this....my daughter takes Cephalexin bid and needed Bactroban ointment for a terrible skin rash. She is much better now.
# Laura
Thursday, February 02, 2012 8:13 AM
For all of us who have children, we can see by all of these posts that there are so many possible infections out there... that can really bring down the immune system, and thus have undesirable physical and psychological manifestations.

What is common in LeRoy and the Lyme, SC, PANDAS, and others.... we need to rebuild the immune systems of our children. So, so many children have compromised immune systems due to many variables...

1) c-section birth vs. vaginal (not getting initial flora from mother through birth canal)
2) perhaps compromised flora of mother (if mother used birth control prior in life, antibiotics,etc)
3) more vaccines given today than a generation ago
4) more antibiotics given today than a generation ago
5) kids wean toward a diet that actually further offsets their digestive flora - feeding pathogenic microbes... many kids gravitate to the carbohydrates and processed sugars... very common in American diet.

the list goes on. Most of our children have damaged gut flora and thus the immune system is not able to fight what it needs to fight. 80% of our immune system lies within the gut lining. So, a damaged gut lining and imbalance of gut flora contributes to our inability to fight off infections.

Dr. Paul Jaminet also talks about how underlying infections are so affecting the health of our population these days. Check out his work (and his wife) at
http://perfecthealthdiet.com/?page_id=2

Also, the Gut and Psychology Syndrome book by Dr. Natasha Campbell-McBride MD - with masters in Nutrition and Neurology. Dr. Campbell-McBride has a great protocol that has helped many thousands around the world...to rebuild their digestive health/gut flora and greatly improve or get rid of some severe psychological issues. www.gaps.me She is based out of the UK, but that are some practitioners here in the states who can help with her protocol.

We as parents need all of the support we can get to help our children have stronger immune systems. Sharing of information is the very start of the process that allows us to gain understanding and find ways to help our children.

Laura
# Concerned lady
Tuesday, February 21, 2012 11:57 AM
You all are wonderful, and I appreciate all your thoughtful comments!

The latest I've heard, is that Dr. Trifiletti, MD (pediatric neurologist) from New Jersey, is treating (for free) about 9 of the Le Roy girls, for strep infection &/or mycoplasma pneumonia infections, and THEY ARE GETTING BETTER! We will be hearing more about this, from him, I'm sure.

PANS/PITANDS/PANDAS may be a big (maybe the biggest) infection factor (Strep, Mycoplasm, ?Lyme Disease, ?Viruses, etc.), causing the tic disorders with or without OCD (Obsessive Compulsive Disorder).

I also hope that Erin Brockovich's (environmental "detectives") team can check further into (1): the 1970 huge toxic spill from a railroad derail accident just 3-4 miles from the Le Roy school, that spewed out a huge amount of cyanide and "TCE" (TCE breaks down into other products such as vinyl chloride, that is a neuro-toxin), and Brockovich's team should continue to look into (2) "fracking" chemicals of various kinds that may be used in natural gas wells right at the school, and which fracking chemicals may never have been reported regarding what those poisonous chemicals were/are, and (3) possible old toxic dump located next to &/or below the girl's softball field by the school.

The inland flooding from torrential rains from the hurricane may have brought more toxic chemicals to the surface, faster than was happening before.

I agree with the possible vaccination connections, as have been well described by others here (Gardasil, with aluminum--a neuro-toxin, & flu shots with mercury--another neuro-toxin, & other vaccines). See VaxTruth.org and NVIC/Nat'l Vaccine Information Center)

There may or may not be a direct connection between the Corinth girls and the Le Roy students. But, even if not a direct connection, maybe the same or similar factors are happening in BOTH places? (infection(s) + vaccination effects + environmental toxins + etc.)

Parents should follow all your good advice, about reading "Saving Sammy" by Beth Maloney, and reading the "latitudes" forums about PANDAS, etc., and reading about vaccine adverse effects, and please push Erin & her associate Bob, to keep lookng for toxins in the environment.

Here's another interesting article, at this link, that includes research by neurologist Michael Jenike,
: http://www.scientificamerican.com/article.cfm?id=could-infection-cause-tourettes-like-symptoms-teenage-girls

# Concerned lady
Thursday, February 23, 2012 2:56 AM
I got an an email today (Wed.), containing a press release by Dr. Trifiletti, who has found INFECTIONS in the Le Roy teens, which are the types of infections that all too commonly cause tic disorders! See his press release:
______________________________

Press Release: Wednesday, February 22, 2012

LE ROY, NY TEENS: UPDATE FROM DR. TRIFILETTI

Ramsey, NJ — February 22, 2012 — Rosario Trifiletti, MD issued the following statement today regarding the teens he is treating in Le Roy, NY. National attention was drawn to the plight of the teens when they were suddenly afflicted with uncontrollable bodily movements sometimes described as tics.

“I continue to work with a PANDAS-like diagnosis. The lab work is now complete on all nine of the patients I examined on January 29, 2012 and has shown evidence of infection by either Streptococcus Pyogenes (the common strep throat bacterium, found in five of nine patients) or Mycoplasma Pneumonia (a bacteria-like agent that is a common cause of a mild pneumonia-like illness, found in eight of nine patients).

Two patients also meet CDC diagnostic criteria for Lyme disease. They are being treated appropriately according to the infectious agents found and are responding to treatment.

In my opinion, these objective findings, which would be exceedingly unlikely to occur by chance alone, support my diagnosis of a PANDAS-like illness.

I must remain open to another possibility such as mass psychogenic illness, which can never be supported or refuted by objective findings. However, given the clinical and laboratory data, I find a PANDAS-like illness a very likely medical diagnosis in these children.

I hope to see the teenagers again soon, but given that I am doing house calls from some two hundred miles away, it requires extraordinary planning. In the meantime, I remain in close contact with their parents."

To reach Dr. Trifiletti contact:

Telephone: 201-962-7284
Email: trifmd@gmail.com
Website: http://www.site.neurokidsr.us


For additional Information about PANDAS [Pediatric Auto-immune Neuro-psychiatric Disorder Associated with Streptococcal bacteria]:

http://www.pandasfoundation.org

http://www.savingsammy.net

http://www.nimh.nih.gov/health/publications/pandas/pandas-frequently-asked-questionsabout-pediatric-autoimmune-neuropsychiatric-disorders-associated-with-streptococcalinfections.shtml

http://ocfoundation.org/PANDAS

http://www.askdrsears.com/topics/childhood-illnesses/ocd

http://www.pandasnetwork.org

#########

___________________________

I hope this helps to partly explain the 'epidemics" of tic disorders, that are happening in many places, and which show that INFECTIONS can be a big part of the picture. Infections can have worse effects, due to environmental toxins, vaccination bad side effects, stress, etc.

Please see the references in this and the previous comments (mine & others')

Sincerely,
Concerned lady
# Lynn
Wednesday, March 28, 2012 7:02 PM
i am a mother of a 6 1/2 year old with TS. She was diagnoised at the age of 2 years old. The syndrome also causes violent rage attacks, ocd, severe anxiety, paranoia. among some other things, it can not be cured but can be managed. Y you guys are saying all this crap, I know these thing due to personal experance.

Post Comment

Name (required)

Email (required)

Enter the code shown above:

KenBarrett
Tipline
Sterling Tents
AFC
Register  |  Login